life with challenges – Patient Worthy

Gaucher Disease Patient and Activist Successfully Improves the Care for Other Rare Disease Patients in Her Country

Post author:Trudy Horsting
Post published:July 11, 2019
Post category:Gaucher Disease Phenylketonuria pku Spinal Muscular Atrophy

This is the story of a brave journalist who was determined to improve care for rare disease patients in her country, North Macedonia. North Macedonia is a developing country located…

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