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Utilizing Patient Voices in Rare Disease Research
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Utilizing Patient Voices in Rare Disease Research

  • Post author:Kendall Mason
  • Post published:March 22, 2022
  • Post category:homocystinuria/Rare Disease

Rare disease research itself is often overlooked in the medical sphere, so it's not difficult to imagine how many singular aspects of rare disease research are forgotten about completely. One…

Continue Reading Utilizing Patient Voices in Rare Disease Research
La perspectiva del paciente es digna de los oídos de la industria

La perspectiva del paciente es digna de los oídos de la industria

  • Post author:Patient Worthy Contributor
  • Post published:October 21, 2016
  • Post category:Rare Disease

Patient Worthy asistió al foro anual de la Fundación EveryLife el pasado martes en Washington, DC. Fue un taller de un día completo acerca de por qué la incorporación de…

Continue Reading La perspectiva del paciente es digna de los oídos de la industria

Las perspectivas de pacientes son cruciales para la industria

  • Post author:Patient Worthy Contributor
  • Post published:March 9, 2016
  • Post category:Rare Disease

Patient Worthy asistió al foro anual organizada por la Fundación EveryLife este pasado martes en Washington, DC. Fue un taller de día completo acerca de por qué la incorporación de…

Continue Reading Las perspectivas de pacientes son cruciales para la industria

Why Patient Perspective is Worthy of Industry Ears

  • Post author:Patient Worthy Contributor
  • Post published:September 19, 2015
  • Post category:Rare Disease

Patient Worthy attended the EveryLife Foundation’s  annual forum this past Tuesday in Washington, DC. It was a full day workshop about why incorporating the patient perspective into the various phases of developing drugs…

Continue Reading Why Patient Perspective is Worthy of Industry Ears

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