PFAPA syndrome – Patient Worthy

dagon_ / Pixabay

Study Finds Children with PFAPA Syndrome Have a Reduced Health-Related Quality of Life

Post author:Anna Hewitt
Post published:August 14, 2018
Post category:Rare Disease

A recent study into Periodic Fever, Aphtous stomatitis, Pharyngitis and Adenitis (PFAPA) syndrome investigated the impact of the condition on children and found that is was associated with a reduction…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Keep Up to Date

Learn More