In his early stages of life, Austin (A.J.) Rose was diagnosed with an ultra-rare disease called pontocerebellar hypoplasia type 6 (PCH6). Now, at three years old, A.J. is a…
Monty Hui, an eight-year-old boy from Australia, and his family have spoken to SBS News about living with a rare disease and the obstacles faced in diagnosis and recognition. He…
Recently, Good Morning America demonstrated the importance of showing children with disabilties examples of diversity in the media. Carolyn Anderson shared with the popular morning show how her 4-year-old-daughter Maren…
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