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Postural Orthostatic Tachychardia Syndrome

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A Patient Living with Multiple Rare Conditions Has Invented a New Infusion Aid for Treatment of Chronic Illness

A Patient Living with Multiple Rare Conditions Has Invented a New Infusion Aid for Treatment of Chronic Illness

  • Post author:Patient Worthy Contributor
  • Post published:July 8, 2025
  • Post category:Myasthenia Gravis

In 2017, Jamie Shultz was feeling on top of the world. She was 25 years old, engaged to the man of her dreams, had just passed the Bar exam, and…

Continue Reading A Patient Living with Multiple Rare Conditions Has Invented a New Infusion Aid for Treatment of Chronic Illness
Navigating a New Life with “The Trifecta” – POTS/MCAS/EDS

Navigating a New Life with “The Trifecta” – POTS/MCAS/EDS

  • Post author:Patient Worthy Contributor
  • Post published:May 20, 2025
  • Post category:Dysautonomia

My name is Sarah. I am a solo mother to a beautiful five-year-old named Ensley! I’m not quite sure where to begin, but my world abruptly changed post-COVID-infection: January 7th…

Continue Reading Navigating a New Life with “The Trifecta” – POTS/MCAS/EDS
Rockers Stirred Up the POTS Benefit for South Carolina Teen
[Source: pixabay.com]

Rockers Stirred Up the POTS Benefit for South Carolina Teen

  • Post author:Erica Zahn
  • Post published:January 24, 2017
  • Post category:Dysautonomia/POTS

Postural orthostatic tachycardia syndrome does not exactly roll off the tongue, so most people refer to it as POTS. It's characterized by a sudden change of blood pressure that happens…

Continue Reading Rockers Stirred Up the POTS Benefit for South Carolina Teen
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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