Siblings: The Unsung Heroes of Rare Disease Families
If you attend a conference of rare disease families, you might not even notice that many of those who are helping out with all aspects of making sure that everything…
If you attend a conference of rare disease families, you might not even notice that many of those who are helping out with all aspects of making sure that everything…
Recently, when another rare mother and I were discussing the many trials that rare disease families face, we agreed that we wished that the general public would understand how vulnerable…