RDCA-DAP – Patient Worthy

Data Collaboration Tool for Accelerating Rare Disease Research Celebrates Success in First Year

Post author:Trudy Horsting
Post published:November 3, 2020
Post category:Phenylketonuria pku Rare Disease

Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) The RDCA-DAP, funded by the FDA, was first launched in September of 2019. Its aim was to make data more accessible for…

Collaboration Between C-Path and NORD will Help Standardize Data and Accelerate Research for Rare Diseases

Post author:Trudy Horsting
Post published:August 14, 2019
Post category:Rare Disease

Critical Path Institute The Critical Path Institute, or C-Path is a nonprofit organization which was established in 2005. It has a US branch, headquartered in Tucson, Arizona as well as…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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