RDDNIH – Patient Worthy

You Need to Participate in the All of Us Research Program of the Precision Medicine Initiative

Post author:Patient Worthy Contributor
Post published:February 27, 2017
Post category:Rare Disease

The All of Us Research Program (The Program) at NIH is AWESOME. Here's what I learned at Rare Disease Day at NIH (#RDDNIH) and what you should know too, so…

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Rare Disease Day at NIH: Hope for Dealing with Emerging Rare Diseases

Post author:Patient Worthy Contributor
Post published:February 27, 2017
Post category:Rare Disease

At #RDDNIH, or Rare Disease Day at NIH, I was definitely troubled by a world map presented, that displayed emerging infectious diseases by region. Let's unpack this a little bit...…

Source: pixabay

What is IRDiRC and How Does it Improve the Rare Disease World?

Post author:Patient Worthy Contributor
Post published:February 27, 2017
Post category:Rare Disease

If there is one thing clear at #RDDNIH, or Rare Disease Day at NIH, it's that there are amazing, brilliant people working hard for our community. The rare disease community…

You Need to Participate in the All of Us Research Program of the Precision Medicine Initiative

Rare Disease Day at NIH: Hope for Dealing with Emerging Rare Diseases

What is IRDiRC and How Does it Improve the Rare Disease World?

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