SJS/TEN – Patient Worthy

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Raising Stevens-Johnson Syndrome Awareness: Viktoria’s Story (Pt. 1)

Post author:Jessica Lynn
Post published:August 30, 2022
Post category:Stevens-Johnson Syndrome

Viktoria Cupay is no stranger to raising awareness about underserved and invisible illnesses. In 2016, two years after she began searching for a diagnosis, Viktoria found out that she was…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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