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Spinal Muscular Atrophy

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She was Called Lazy, Then Told She’d Never Walk
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She was Called Lazy, Then Told She’d Never Walk

  • Post author:Rebekah
  • Post published:February 14, 2017
  • Post category:Spinal Muscular Atrophy

A frequent problem with for rare disease patients worldwide is being correctly diagnosed. Prior to the diagnosis you won't know the proper treatments, you don't know why you're experiencing your…

Continue Reading She was Called Lazy, Then Told She’d Never Walk
FDA Approves New Drug for Children and Adults with SMA
[Source: pixabay.com]

FDA Approves New Drug for Children and Adults with SMA

  • Post author:Al Pendleton
  • Post published:February 13, 2017
  • Post category:Rare Disease/Spinal Muscular Atrophy/Timely

The first medication to combat spinal muscular atrophy (SMA) has recently been approved by the United States Food and Drug Administration. It is approved for use by children as well…

Continue Reading FDA Approves New Drug for Children and Adults with SMA
Parents: Get an SMA Early Check for Your Newborn!
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Parents: Get an SMA Early Check for Your Newborn!

  • Post author:Nia
  • Post published:February 3, 2017
  • Post category:Spinal Muscular Atrophy/Timely

Genetic testing for Spinal Muscular Atrophy (SMA). Most US-born newborns are undergo testing to find out if they have certain genetic conditions. These tests vary from state to state. There…

Continue Reading Parents: Get an SMA Early Check for Your Newborn!
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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