St. Louis Childrens Hospital

“The Boy with the Turquoise Ribbon” Helps Families Understand CDH

Post author:Jessica Lynn
Post published:April 30, 2021
Post category:Congenital Diaphragmatic Hernia

Oftentimes, the rare disease journey can be difficult. Diagnosis may take years. Some conditions are still relatively unknown by doctors. Families must not only learn about these conditions, but how…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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