the b.l.a.i.r. connection – Patient Worthy

Patient Worthy is Excited to Announce a New Partnership with The B.L.A.I.R. Connection!

Post author:Trudy Horsting
Post published:April 1, 2019
Post category:MPS III (Sanfilippo Syndrome)Rare Disease

A New Partnership Patient Worthy is honored and excited to announce our new partnership with The B.L.A.I.R. Connection. The B.L.A.I.R. Connection was founded by Grey Chapin who knows firsthand what…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

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