Baby Rosemary’s Plea
Rare disease mom Bobbie recently had a new baby. While she is overjoyed at the latest addition to her family, she is fearing for her baby daughter's life. Her family…
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Baby Rosemary’s Plea
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Revealing a Bleeding Disorder: Informative, Not Frightening
First of all, many people have experienced a nose bleed at some point. A nose bleed is a very common annoyance for many. These people typically just brush it off as something…
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Revealing a Bleeding Disorder: Informative, Not Frightening
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This Family’s Curse is Actually a Blessing in Disguise
Shelly Mountain has traced her family history and shares how von Willebrand disease (VWD) has impacted six generations very differently since her great-great grandmother's era. Medical treatment was difficult back…
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This Family’s Curse is Actually a Blessing in Disguise
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Is Social Taboo The Reason Behind Your Misdiagnosis?
Life is hard. Life gets even harder for a woman once a month. The topic of menstruation always has been sort of taboo. I remember getting my first period. While crying on the toilet,…
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Is Social Taboo The Reason Behind Your Misdiagnosis?
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What Walks and Talks Like Hemophilia But Isn’t What You Think?
Von Willibrand Disease (VWD) is a bleeding disorder, not unlike hemophilia A and hemophilia B. But don't be fooled. It's very different. It's also the most common bleeding disorder on…
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What Walks and Talks Like Hemophilia But Isn’t What You Think?
5 Tips to Help Manage Von Willebrand Disease
5 Tips to Maintain a Healthy, Active Lifestyle While Living With Von Willebrand Disease Von Willebrand disease (vWD) is a rare bleeding disorder, found in about 1 percent of the…
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5 Tips to Help Manage Von Willebrand Disease
