Sometimes we want things to be explained to us in a way we can relate to. Mother of two and Common Variable Immune Deficiency (CVID) Blogger on “Through Accepting Limits” helps explain information about Primary Immune Deficiencies (PIDs) in a straight-forward way without all the medical jargon.
Here are 5 helpful answers to some of the most common questions about PID, as explained in her blog.
1.Q: What are Primary Immune Deficiencies (PID)?
A: Primary immunodeficiency disorders (PIDs) is a group of rare disorders that can range from mild to severe. For example, babies and children may experience frequent but minor infections, while more severe cases may be life-threatening infections. For some, the deficiency may resolve as children mature, however, for others, these are chronic illnesses that require medical attention and persistent treatment; infections and additional complications can ensue.
2. Q: Is it possible to catch PID? How many people have it?
A: In the United Kingdom, it’s estimated that approximately 5000 people have PID, while in the United States, there are more than 200 different forms of primary immune deficiency diseases (PIDDs) affecting approximately 500,000 people. PIDs are not contagious; they are genetic conditions that typically appear at birth.
3. Q: What are the different types of PID?
A: Some of the approximately 80 different types of PIDs are listed below
- Common Variable Immune Deficiency
- X-Linked Agammaglobulinemia
- Selective IgA Deficiency
- Severe Combined Immune Deficiency
- Chronic Granulomatous Disease
- Wiskott-Aldrich Syndrome
- Hyper IgM Syndrome
- DiGeorge Syndrome
- IgG Subclass Deficiency and Specific Antibody Deficiency
- Ataxia Telangiectasia
- Hyper IgE Syndrome
- Complement Deficiencies
4. Q: How do I know if I or my loved one has PID?
A: For people who have PID, it can be difficult to receive a proper diagnosis and thus receive appropriate treatment. For some, it could potentially take years resulting in additional health complications.
5. Q: Where can I learn more about PID and find support?
A: There are several international organizations, that provide additional information, inspiration, hope, and support for PID patients and their loved ones.
http://www.piduk.org/
http://www.niaid.nih.gov/topics/immunedeficiency/Pages/Default.aspx
http://throughacceptinglimits.com/
For additional support, check out various ways on how to manage CVID that can help you or others.
The Through Accepting Limits blog is filled with real and honest stories about a mother battling CVID, while caring for her two children. Check out her blog to read more about what inspires her and take a glimpse into her life. She details a remarkable story about how she helped her autistic son overcome fear and become the life of the party.
Share this article if you think it’s time the world gets a little more acquainted with these rare, but serious conditions.
