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Daily Archives: August 24, 2015

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Meme: Rare Should Never Mean Neglected. Pass it Along!

Meme: Rare Should Never Mean Neglected. Pass it Along!

  • Post author:Patient Worthy Contributor
  • Post published:August 24, 2015
  • Post category:Rare Disease

Pass it along, the world needs to hear your voices! Share to your social networks by choosing a button below or save it and share it everywhere!  

Continue Reading Meme: Rare Should Never Mean Neglected. Pass it Along!
This Man Proves Paralympians are the Best Athletes

This Man Proves Paralympians are the Best Athletes

  • Post author:Patient Worthy Contributor
  • Post published:August 24, 2015
  • Post category:Cystinosis/Dystonia/Rare Disease

On August 17, 1999, Ian Kent woke up with a gnarled body. "Two years later I learned to walk again," he told the Toronto Star. Kent had been a competitive…

Continue Reading This Man Proves Paralympians are the Best Athletes
The Conspiracy of 9/ll and Heart Disease Exposed

The Conspiracy of 9/ll and Heart Disease Exposed

  • Post author:Patient Worthy Contributor
  • Post published:August 24, 2015
  • Post category:Familial Hypercholesterolemia/Homozygous Familial Hypercholesterolemia/Rare Disease

Here’s the scenario: You or someone you love has just been diagnosed with high cholesterol. You’re probably on overload trying to digest what this life-threatening condition means, the impact it…

Continue Reading The Conspiracy of 9/ll and Heart Disease Exposed
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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