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Daily Archives: September 2, 2015

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¿¡Qué!? ¿Patient Worthy is Introducing Posts en Español?

¿¡Qué!? ¿Patient Worthy is Introducing Posts en Español?

  • Post author:Patient Worthy Contributor
  • Post published:September 2, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

We have some great news! Patient Worthy is learning to speak Spanish! I mean 37 million people in America do, so it's time for us to as well. The heart…

Continue Reading ¿¡Qué!? ¿Patient Worthy is Introducing Posts en Español?
This Boy Went to the Internet for Help, the Response Shocked Him

This Boy Went to the Internet for Help, the Response Shocked Him

  • Post author:Patient Worthy Contributor
  • Post published:September 2, 2015
  • Post category:GLUT1 DS/Rare Disease

Writing on the Internet can feel a lot like screaming into the void. You never know who can hear you or who even cares. But with the rare disease community…

Continue Reading This Boy Went to the Internet for Help, the Response Shocked Him
This Is How You Respond To Your Child’s Chronic Illness

This Is How You Respond To Your Child’s Chronic Illness

  • Post author:Patient Worthy Contributor
  • Post published:September 2, 2015
  • Post category:Dystonia/Rare Disease

Tyler Staab was like any other seven-year-old boy—energetic, rowdy, and super interested in sports and playing outside. But in February, 2005 his whole world changed, and that of his parents.…

Continue Reading This Is How You Respond To Your Child’s Chronic Illness
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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