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Daily Archives: September 18, 2015

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Editor’s Choice Weekend Roundup: 9-18-15

Editor’s Choice Weekend Roundup: 9-18-15

  • Post author:Patient Worthy Contributor
  • Post published:September 18, 2015
  • Post category:Acromegaly/Dystonia/Homozygous Familial Hypercholesterolemia

Check out and pass along the Editor's Choice articles of the week! [one_half] [/one_half] [one_half_last] This is Why People Are Shakin’ It for Dystonia Awareness Month When dystonia leaves you…

Continue Reading Editor’s Choice Weekend Roundup: 9-18-15
Follow Patient Worthy Live at the Orphan Drug Summit in Copenhagen!

Follow Patient Worthy Live at the Orphan Drug Summit in Copenhagen!

  • Post author:Patient Worthy Contributor
  • Post published:September 18, 2015
  • Post category:Rare Disease

Patient Worthy is bringing another conference to you through live tweets (@PatientWorthy)! Yesterday and today our director of advocacy is attending the Orphan Drug Summit in Copenhagen , Denmark. Among…

Continue Reading Follow Patient Worthy Live at the Orphan Drug Summit in Copenhagen!

Why Your Disease Doesn’t Make You a Comeback Kid

  • Post author:Patient Worthy Contributor
  • Post published:September 18, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

The world loves a good comeback story. And I am all for giving people their well-deserved “congrats” when they’ve faced down adversity and accomplished something fantastic. Franklin Gutierrez, for example,…

Continue Reading Why Your Disease Doesn’t Make You a Comeback Kid
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
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