What in the World is HAE in 5 Pictures

Hereditary angioedema may be a rare disease that qualifies for “orphan” drug status, but we are far from alone.

little orphan annie
Sandy! Ain’t it SWELL we’ve got each other??

There are HAE organizations and treatment facilities all over the world ready to provide support for their communities and anyone with HAE who wants to connect across the continents.

Around the world in HAE-ty Days!
Around the world in HAE-ty Days!

In fact, the Hereditary Angioedema International association has 49 member countries with 1,553 members.

crowd surfing
We’re everywhere! We’re everywhere! People with HAE know how to ROCK!

So how do the HAE associations differ? Check out some of these different websites!

  • HAEi bills itself as the International Patient Organization for C1-Inhibitor Deficiencies.
  •  HAE Australasia serves people with hereditary angioedema in Australia and New Zealand, focusing on hope, advocacy and education.
  •  HAE Canada is a patient group that was formed in 2010 to work with physicians, nurses and other health care professionals to create a better life for those patients living with HAE and other related angioedema in Canada.

One of the neat programs HAE Canada has is HAE Radio, a podcast that explores the realities of life with HAE in Canada.

radio boogie
HAE! It’s big in Japan…. and on the airwaves in Canada! Source: giphy.com

Check out their FAQs, for a slightly different look at HAE.

hocky anthem
Oh, Canada…. we love your HAE FAQS!

EmpatheticBadass

EmpatheticBadass

EmpatheticBadass is a young-at-heart writer from Ohio (Go, Bobcats & The Marching 110!)) who is passionate about being a voice for the patient perspective.

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