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Daily Archives: November 3, 2015

Home » Archives for November 3, 2015
What in the World is HAE in 5 Pictures

What in the World is HAE in 5 Pictures

  • Post author:EmpatheticBadass
  • Post published:November 3, 2015
  • Post category:HAE/Rare Disease

Hereditary angioedema may be a rare disease that qualifies for “orphan” drug status, but we are far from alone. There are HAE organizations and treatment facilities all over the world…

Continue Reading What in the World is HAE in 5 Pictures
Trump This?! Obamacare to the Rescue. Seriously.

Trump This?! Obamacare to the Rescue. Seriously.

  • Post author:Alisha Stone
  • Post published:November 3, 2015
  • Post category:Dystonia/Rare Disease

Let’s face it. Every now and then, you run across an article that makes ya wanna go, “Whaaaa?” And this is the perfect example. Apparently, a bunch of research analysts…

Continue Reading Trump This?! Obamacare to the Rescue. Seriously.
What Does This Witch Have in Common with CRPS/RSD?!

What Does This Witch Have in Common with CRPS/RSD?!

  • Post author:Alisha Stone
  • Post published:November 3, 2015
  • Post category:Complex Regional Pain Syndrome/Rare Disease

‘Tis the season! Picture it. Salem, Massachusetts. It’s 1692 and suddenly, things have gone horribly, horribly wrong for you. In the middle of the night, a small band of angry…

Continue Reading What Does This Witch Have in Common with CRPS/RSD?!

This is the Ultimate Mother-Daughter Success Story

  • Post author:EmpatheticBadass
  • Post published:November 3, 2015
  • Post category:Complex Regional Pain Syndrome/Rare Disease

You won’t come across too many people in your lifetimes like Elaine Gomez and her daughter, Michelle DeMont. And you probably won’t come across anyone who has died, or nearly…

Continue Reading This is the Ultimate Mother-Daughter Success Story

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X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition


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Catalyst’s LEMS Aware Podcast Helps Connect Patients

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STUDY OF THE WEEK

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.

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