No-Way-Cupid

• Post author:Rebekah
• Post published:December 10, 2015
• Post category:Rare Disease

I’ve been using internet dating sites for the past eleven years. I have also been dealing with a rare and undiagnosed disease for the past five and a half years.…

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Lessons from Mom: Life with a Chronic Illnesses

• Post author:Patient Worthy Contributor
• Post published:December 10, 2015
• Post category:Rare Disease

Imagine for a moment what your version of a perfect life looks like. Perhaps it’s a glamorous life filled with fame and fortune, or perhaps it’s a life where you…

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You’ll Do Your Happy Dance When You Read About This Little Boy!

• Post author:Alisha Stone
• Post published:December 10, 2015
• Post category:Cystic Fibrosis/Rare Disease

Ever have one of those days when you just weren’t feeling very enthused about your life? You know what I’m talking about. Those ho-hum blues. Those days when you don’t…

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These Rich Guys Are the New Robin Hoods Saving Rare Patients

• Post author:Winnie Nash
• Post published:December 10, 2015
• Post category:Cystic Fibrosis/Primary Immunodeficiencies/Rare Disease

Let’s blow your mind for a minute. There are approximately 7,000 different types of rare diseases, and more being discovered every day. According to Global Genes, there are 30-million people in…

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Meet Ronnie: Exercising His Heroic Right to Inspire the Cystic Fibrosis Community

• Post author:Ronald Ledsen
• Post published:December 10, 2015
• Post category:Cystic Fibrosis/Rare Disease

PatientWorthy is teaming up with CysticLife.org to spotlight some of the members in their awesome community! CysticLife.org sprang from a blog started by CF patient, Ronnie Sharpe, to track his life…

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Register now! Webinar Today: The Power of Patient Driven Research

• Post author:Patient Worthy Contributor
• Post published:December 10, 2015
• Post category:Cystic Fibrosis/Rare Disease

Ambry Genetics is a service provider to research and development physicians and patients. they've been around since 1999 and have become an authority and trusted source in genetic counseling. Ambry…

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Exercise Prescriptions and Why Patient Worthy is Excited

• Post author:Patient Worthy Contributor
• Post published:December 10, 2015
• Post category:Cystic Fibrosis/Rare Disease

According to the Cystic Fibrosis Foundation, about 30,000 people are living with CF in the US and just about 1,000 new cases are diagnosed each year. Cystic Fibrosis (CF) is a chronic inherited disease.…

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