Happy Friday PatientWorthians! We are so excited to announce our partnership with CysticLife this month.
PatientWorthy is teaming up with CysticLife.org to spread awareness of CF and support their collaboration with the Mayo Clinic for a community-driven research project investigating the benefits of exercise for CF patients.
In addition to our cystic fibrosis articles, we have a riveting original patient piece on Ehlers-Danlos syndrome.
Enjoy catching up on this week’s Editor’s Choice posts!
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Ronnie’s Call to Action for Cystic Fibrosis Research
CysticLife.org sprang from a blog started by CF patient Ronnie Sharpe, to track his life and exercise routine.
Since then, it has grown into a vibrant social network boasting over 8,000 members who exchange tips, ideas, and encouragement. Help him and the Mayo Clinic engage in research to discover new cystic fibrosis treatment!
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Why is Canada the Place to be with CF?
Canada is outshining it’s peers on the cystic fibrosis front.
With the highest average life expectancy for CF patients, amongst other stats, Canada proves to be the forerunner when it comes to CF research and contributions to the CF community.
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Exercise Prescriptions and Why Patient Worthy is Excited
Cystic fibrosis treatment is currently constrained to seven marketed drugs.
CysticLife wants to improve that number, and improve the quality of life for CF patients everywhere. Read this article to find out more about the potential exercise prescriptions have to improve CF life.
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10 Things EDS Has Taught Me.
PW Contribute and German citizen Karina shares 10 valuable life lessons that having EDS has taught her.
Not only does this apply to Ehlers-Danlos patients, but to chronically ill and rare disease patients everywhere!
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