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Daily Archives: December 14, 2015

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42 Miles in Frigid Water for CF

  • Post author:Rebekah
  • Post published:December 14, 2015
  • Post category:Cystic Fibrosis/Rare Disease

Robert began his mission to raise awareness of Cystic Fibrosis after getting to know someone who had lived with it for forty one years. As he puts it; “She inspired…

Continue Reading 42 Miles in Frigid Water for CF
4 Creative Ways to Deal with Your Chronic Illness

4 Creative Ways to Deal with Your Chronic Illness

  • Post author:Patient Worthy Contributor
  • Post published:December 14, 2015
  • Post category:Rare Disease

Newly diagnosed patients and those who have been living with their illness(es) for a long time cope with their situation in very different ways. Some like to read while others…

Continue Reading 4 Creative Ways to Deal with Your Chronic Illness

What Would YOU Say To This Guy With CF?

  • Post author:EmpatheticBadass
  • Post published:December 14, 2015
  • Post category:Cystic Fibrosis/Rare Disease

On the fabulous Cystic Fibrosis Lifestyle Foundation website, CF blogger Brian Callanan has issued a call to action. He wants to hear from all of you whether you are reactive or proactive…

Continue Reading What Would YOU Say To This Guy With CF?

The Burning Question After a Lyme Diagnosis: What’s Next?

  • Post author:Patient Worthy Contributor
  • Post published:December 14, 2015
  • Post category:Lyme Disease/Rare Disease

To catch up on Alexis' Lyme disease journey, check out Part 1 of her story here. "In my line of work, when evaluating a case for a newly placed foster…

Continue Reading The Burning Question After a Lyme Diagnosis: What’s Next?

Proteins Gone Wild! Revealing New Research Into CF Cure

  • Post author:Winnie Nash
  • Post published:December 14, 2015
  • Post category:Cystic Fibrosis/Rare Disease

Everyone remembers the kid in class who wouldn’t stop talking long enough to know the lunch bell rang. Or the bad dinner date that wouldn’t shut up about their cat.…

Continue Reading Proteins Gone Wild! Revealing New Research Into CF Cure

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