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Daily Archives: January 5, 2016

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Canada’s Little Trooper: See How This Sick Kid Got His CAPS/MAS Diagnosis

Canada’s Little Trooper: See How This Sick Kid Got His CAPS/MAS Diagnosis

  • Post author:Kiki Jones
  • Post published:January 5, 2016
  • Post category:CAPS/Rare Disease

Daniel's mother, Christine, considers him to be her "Special Little Boy." Born premature after five years of infertility and miscarriages, Christine thinks of Daniel as her miracle. Imagine her horror…

Continue Reading Canada’s Little Trooper: See How This Sick Kid Got His CAPS/MAS Diagnosis
How This Remarkable Research Will Lead To Better Sarcoidosis Diagnoses
jarmoluk / Pixabay

How This Remarkable Research Will Lead To Better Sarcoidosis Diagnoses

  • Post author:Farrah Fontaine
  • Post published:January 5, 2016
  • Post category:Rare Disease/Sarcoidosis

If you have an autoimmune disease, you probably know that there's a lot of overlap between all the different autoimmune diseases, including symptoms, specialists, and treatments (thank goodness for off-label uses…

Continue Reading How This Remarkable Research Will Lead To Better Sarcoidosis Diagnoses

5 Ways to Make 2016 a Better Year #NewYearNewYou

  • Post author:Patient Worthy Contributor
  • Post published:January 5, 2016
  • Post category:Lyme Disease/Rare Disease

Alexis Rosen was diagnosed with chronic Lyme disease after much confusion and months of searching for answers. She has since begun IV antibiotic therapy. After (finally) being diagnosed and deciding on a treatment…

Continue Reading 5 Ways to Make 2016 a Better Year #NewYearNewYou
Why Will This Breakthrough Research Give You New Hope?

Why Will This Breakthrough Research Give You New Hope?

  • Post author:Kiki Jones
  • Post published:January 5, 2016
  • Post category:Duchenne Muscular Dystrophy/Rare Disease

When Debra Chiabai helped her good-Samaritan dad volunteer for his charity of choice—Muscular Dystrophy Canada—they both thought of it as a simple, nice thing to do. Many years later, that…

Continue Reading Why Will This Breakthrough Research Give You New Hope?

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