Pinterest and What You Might Be Missing Out On

By now, you may have heard of the website, Pinterest, which came to the public’s attention in 2011. Or, you may be one of millions who actively engages with the photo-sharing site. It’s free to join, I might add.

When it launched, Pinterest was perceived as a place to store recipes and photos, but it’s taken on greater meaning in the rare disease community.

For example, if you suffer from a rare, genetically-linked condition called, Familial Cold Auto-inflammatory Syndrome, there’s a Pinterest board chock-full of resources.

You can find all kinds of tips and tricks for dealing with hundreds of different health concerns on Pinterest, but beware: As Abraham Lincoln said, “Everything you read on the internet isn’t true.”

In other words, if you have a health concern, talk to your healthcare provider!

Still, Pinterest is a great way to feel connected to others who are sharing your particular journey.

Have fun!

Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

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