By now, you may have heard of the website, Pinterest, which came to the public’s attention in 2011. Or, you may be one of millions who actively engages with the photo-sharing site. It’s free to join, I might add.
When it launched, Pinterest was perceived as a place to store recipes and photos, but it’s taken on greater meaning in the rare disease community.
For example, if you suffer from a rare, genetically-linked condition called, Familial Cold Auto-inflammatory Syndrome, there’s a Pinterest board chock-full of resources.
You can find all kinds of tips and tricks for dealing with hundreds of different health concerns on Pinterest, but beware: As Abraham Lincoln said, “Everything you read on the internet isn’t true.”
In other words, if you have a health concern, talk to your healthcare provider!
Still, Pinterest is a great way to feel connected to others who are sharing your particular journey.
Have fun!
