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Daily Archives: January 11, 2016

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Pinterest and What You Might Be Missing Out On

Pinterest and What You Might Be Missing Out On

  • Post author:Erica Zahn
  • Post published:January 11, 2016
  • Post category:CAPS/FCAS/Rare Disease

By now, you may have heard of the website, Pinterest, which came to the public's attention in 2011. Or, you may be one of millions who actively engages with the…

Continue Reading Pinterest and What You Might Be Missing Out On
Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!

Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!

  • Post author:Erica Zahn
  • Post published:January 11, 2016
  • Post category:Dystonia/Rare Disease

Life would probably be easier for three-year-old Kayden Bell if doctors could determine a diagnosis for him. So far, he's been diagnosed with microcephaly, global developmental delay, hypomyelination and dystonia with…

Continue Reading Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!
Sue’s Hives Are Going Haywire! Part 2 of Her Rare Disease Diagnosis

Sue’s Hives Are Going Haywire! Part 2 of Her Rare Disease Diagnosis

  • Post author:Patient Worthy Contributor
  • Post published:January 11, 2016
  • Post category:Rare Disease

If you haven't gotten a chance to read part 1 of Sue's Story click here! For the rest of you who we left on the edge of your seats, without…

Continue Reading Sue’s Hives Are Going Haywire! Part 2 of Her Rare Disease Diagnosis
New You, New Year: The Secret to Change

New You, New Year: The Secret to Change

  • Post author:Patient Worthy Contributor
  • Post published:January 11, 2016
  • Post category:Rare Disease

Before any new beginning comes a last goodbye. As this old year closes out, I am overwhelmed by the amount of change that has taken place within it. Most years…

Continue Reading New You, New Year: The Secret to Change

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