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Daily Archives: January 11, 2016

Home » Archives for January 11, 2016
Pinterest and What You Might Be Missing Out On

Pinterest and What You Might Be Missing Out On

  • Post author:Erica Zahn
  • Post published:January 11, 2016
  • Post category:CAPS/FCAS/Rare Disease

By now, you may have heard of the website, Pinterest, which came to the public's attention in 2011. Or, you may be one of millions who actively engages with the…

Continue Reading Pinterest and What You Might Be Missing Out On
Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!

Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!

  • Post author:Erica Zahn
  • Post published:January 11, 2016
  • Post category:Dystonia/Rare Disease

Life would probably be easier for three-year-old Kayden Bell if doctors could determine a diagnosis for him. So far, he's been diagnosed with microcephaly, global developmental delay, hypomyelination and dystonia with…

Continue Reading Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!
Sue’s Hives Are Going Haywire! Part 2 of Her Rare Disease Diagnosis

Sue’s Hives Are Going Haywire! Part 2 of Her Rare Disease Diagnosis

  • Post author:Patient Worthy Contributor
  • Post published:January 11, 2016
  • Post category:Rare Disease

If you haven't gotten a chance to read part 1 of Sue's Story click here! For the rest of you who we left on the edge of your seats, without…

Continue Reading Sue’s Hives Are Going Haywire! Part 2 of Her Rare Disease Diagnosis
New You, New Year: The Secret to Change

New You, New Year: The Secret to Change

  • Post author:Patient Worthy Contributor
  • Post published:January 11, 2016
  • Post category:Rare Disease

Before any new beginning comes a last goodbye. As this old year closes out, I am overwhelmed by the amount of change that has taken place within it. Most years…

Continue Reading New You, New Year: The Secret to Change

OF INTEREST


skintones


“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story


Picture of the family


Lila’s Journey: Staying Positive While Living With Pediatric Low-Grade Glioma (pLGG)

DIVERSE VOICES


RSV Vial


Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes


Hands Supporting Each Other


We Need Equity and Diversity Within Rare Disease Research


Image of people


DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1


Picture of a crowd


Bridging the Diversity Gap in Healthcare


Congratulations


Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Patient Stories

STUDY OF THE WEEK

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.

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