Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: January 28, 2016

  1. Home>
  2. 2016>
  3. January>
  4. 28
Conozcamos a Carla: Ella pelea 12 rondas con el Dolor Diariamente

Conozcamos a Carla: Ella pelea 12 rondas con el Dolor Diariamente

  • Post author:Patient Worthy Contributor
  • Post published:January 28, 2016
  • Post category:Complex Regional Pain Syndrome/Rare Disease

Soy Carla Fairchild. Tengo cuarenta y siete años, y la familia y la moda decir todo para mí; son yo. Ambos son mi amor, mi vida y mi pasión. Ser…

Continue Reading Conozcamos a Carla: Ella pelea 12 rondas con el Dolor Diariamente
Cystic Fibrosis Patient Learns the Power of Words

Cystic Fibrosis Patient Learns the Power of Words

  • Post author:James Ernest Cassady
  • Post published:January 28, 2016
  • Post category:Cystic Fibrosis/Rare Disease

"Sticks and stones may break my bones But words will never hurt me" Despite the fact that most of us grew up reciting this old adage, by the time we're adults…

Continue Reading Cystic Fibrosis Patient Learns the Power of Words
Lyme and Other Tick-Bourne Illnesses in the Blood Supply?

Lyme and Other Tick-Bourne Illnesses in the Blood Supply?

  • Post author:Patient Worthy Contributor
  • Post published:January 28, 2016
  • Post category:Lyme Disease/Rare Disease

Fact: I donated blood before I knew I had Lyme disease, possibly contaminating whoever recieved my donation. I immediately felt guilty once I learned of my diagnosis, even though I had…

Continue Reading Lyme and Other Tick-Bourne Illnesses in the Blood Supply?
Event Announcement: 2016 Acromegaly Coneference Details Here!
source: pixabay.com

Event Announcement: 2016 Acromegaly Coneference Details Here!

  • Post author:Patient Worthy Contributor
  • Post published:January 28, 2016
  • Post category:Acromegaly/Rare Disease

2016 Acromegaly Community Bi-annual Meeting, April 29-May 1st Mark your calendars, reserve your hotel room and put a price alert on Kayak.com to attend the Bi-Annual conference of the Acromegaly Community.…

Continue Reading Event Announcement: 2016 Acromegaly Coneference Details Here!
How The FDA Is Making This Boy More Sick

How The FDA Is Making This Boy More Sick

  • Post author:Erica Zahn
  • Post published:January 28, 2016
  • Post category:Cystic Fibrosis/Duchenne Muscular Dystrophy/Rare Disease

Last year, the FDA approved a record number of new drugs to treat rare diseases, according to the National Organization for Rare Disorders (NORD). In all, 21 "orphan" drugs were…

Continue Reading How The FDA Is Making This Boy More Sick
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info