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Daily Archives: February 16, 2016

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¡Invisible Illness Awareness Week 2015 comienza hoy!

¡Invisible Illness Awareness Week 2015 comienza hoy!

  • Post author:Patient Worthy Contributor
  • Post published:February 16, 2016
  • Post category:Rare Disease

Esta introducción a la semana de concienciación sobre las enfermedades invisibles, o como nosotros le llamamos #IIWK15 por sus siglas en inglés (Invisible Illness Week) fue escrita para una publicación…

Continue Reading ¡Invisible Illness Awareness Week 2015 comienza hoy!
Is The Government Finally Doing Something Right By Your Children?

Is The Government Finally Doing Something Right By Your Children?

  • Post author:Alisha Stone
  • Post published:February 16, 2016
  • Post category:Pompe Disease

Imagine your newborn not thriving? Imagine how helpless and frightened you’d feel if your child’s heart and muscles were weak. Devastating. Listen up people, there’s important information you need to know…

Continue Reading Is The Government Finally Doing Something Right By Your Children?
How to Get Your Tyrosinemia Dream Team for Excellent Care!
Source: Pixabay

How to Get Your Tyrosinemia Dream Team for Excellent Care!

  • Post author:Alisha Stone
  • Post published:February 16, 2016
  • Post category:Tyrosinemia

Every now and then, you come across important information that really screams for your attention and you’ve just gotta share it. Here’s the scoop! If your loved one has been…

Continue Reading How to Get Your Tyrosinemia Dream Team for Excellent Care!
Hello Tremors, My Old Friend

Hello Tremors, My Old Friend

  • Post author:Patient Worthy Contributor
  • Post published:February 16, 2016
  • Post category:Rare Disease

I realize that as a woman who has been unmarried and dating for her entire adult life, my vocabulary is vastly different from that of someone who has been married…

Continue Reading Hello Tremors, My Old Friend
How To Be A Princess And Inform Your Subjects About PH

How To Be A Princess And Inform Your Subjects About PH

  • Post author:Farrah Fontaine
  • Post published:February 16, 2016
  • Post category:Primary Pulmonary Hypertension

When you have pulmonary hypertension (PH), sometimes the idea of just walking up stairs can be daunting. Kayleigh Johnson, who has been living with pulmonary arterial hypertension (PAH) for years, is going…

Continue Reading How To Be A Princess And Inform Your Subjects About PH

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