Battle for the Blades Scores Big for Cystinosis
Winters may be long in Canada, but the residents of Ontario’s Saugeen Shores are hardly cold-hearted. On April 1st, 2016, the Saugeen Shores Skating Club is inviting Ex-NHL players, figure…
Winters may be long in Canada, but the residents of Ontario’s Saugeen Shores are hardly cold-hearted. On April 1st, 2016, the Saugeen Shores Skating Club is inviting Ex-NHL players, figure…
This one may not be fresh and recent, but it’s worth another look. It’s kind of an “oldie but goodie,” if you will. And it’s also about damn time someone…
"I AM FEELING LIKE I MAY NOT EVER MAKE A DIFFERENCE." Through the power of the Internet (blogs, videos, message boards, or what have you) those living with rare diseases have the…
Welcome to the third of many posts related to Patient Worthy’s Video Series! We had the pleasure of interviewing PW contributor Kathryn Ferguson, a mother and a wife, who has been diagnosed…
Mi nombre es Lisa y yo vivo con la artritis reumatoide (AR) y la fibromialgia. #myinvisiblefight está en curso, pero tengo fe, la familia y los amigos. Esta es mi…