Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: February 19, 2016

  1. Home>
  2. 2016>
  3. February>
  4. 19
Estos padres necesitan todo tu apoyo para la fiebre incesante de su hija

Estos padres necesitan todo tu apoyo para la fiebre incesante de su hija

  • Post author:Patient Worthy Contributor
  • Post published:February 19, 2016
  • Post category:CAPS/Rare Disease

Todo el mundo le encanta un poco de misterio, excepto cuando se trata de tipos ominosos de enfermedades autoinmunes. En un artículo de Rare Connect, un sitio web que conecta…

Continue Reading Estos padres necesitan todo tu apoyo para la fiebre incesante de su hija
5 Apps That You Need In Your Chronic Fight

5 Apps That You Need In Your Chronic Fight

  • Post author:Rebekah
  • Post published:February 19, 2016
  • Post category:Rare Disease

Let's face it, it's not a secret that phones and tablets are taking over our lives! Even the littlest among us are showing a shocking attachment to the glowing screens.…

Continue Reading 5 Apps That You Need In Your Chronic Fight
Editor’s Choice: Inspiration Porn and Dick Jokes

Editor’s Choice: Inspiration Porn and Dick Jokes

  • Post author:Patient Worthy Contributor
  • Post published:February 19, 2016
  • Post category:Acromegaly/POTS/Rare Disease

You made it through another week Patient Worthians! This week, we have a pretty intriguing post on acromegaly's relationship with ED. ED is absolutely no laughing matter, but this post is both informative…

Continue Reading Editor’s Choice: Inspiration Porn and Dick Jokes
Fitness and Family Help One Woman Overcome Cystinosis

Fitness and Family Help One Woman Overcome Cystinosis

  • Post author:Ronald Ledsen
  • Post published:February 19, 2016
  • Post category:Cystinosis

On their face, exercise and illness would appear to be diametrically opposed states of mind. But there’s plenty of anecdotal and scientific evidence to suggest that overall physical fitness can…

Continue Reading Fitness and Family Help One Woman Overcome Cystinosis
You Know What They Say About Men With Big Feet?

You Know What They Say About Men With Big Feet?

  • Post author:Ronald Ledsen
  • Post published:February 19, 2016
  • Post category:Acromegaly

Okay, so speaking as a dude, I have a confession to make: Dick jokes make me laugh. They make me laugh hard. (Sorry…) And most guys, whether they admit to…

Continue Reading You Know What They Say About Men With Big Feet?
Virginia Spearheading Lyme Disease Legislation

Virginia Spearheading Lyme Disease Legislation

  • Post author:Patient Worthy Contributor
  • Post published:February 19, 2016
  • Post category:Lyme Disease

Guys, I am so pumped to be from Virginia right now. Having gone to the University of Virginia, I definitely have state pride, but the latest legislation passed in my…

Continue Reading Virginia Spearheading Lyme Disease Legislation

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info