Extra, Extra! Read All About It: Bone Marrow Donor Needed for CGD Patient!

When the word came out that a sick baby was in need of a bone marrow transplant and no one in his family was a perfect match, students at Emily Carr Secondary School in Woodbridge, Ontario, Canada, decided to take action.

Amazingly, they put together a Stem Cell Transplant clinic at the school and invited their families, friends, and members of the community (healthy people between the ages of 17 and 35) to see if they would be a match.

Their efforts were on behalf of one-year-old boy named Austin who has chronic granulomatous disease, also known as Bridges-Good syndrome.

People with this inherited primary immunodeficiency disease are unable to fight off common germs, fungi, and infections. In the most serious cases, patients can develop puss-filled abscesses, swollen lymph nodes in the neck, and persistent diarrhea. Apart from a bone marrow or stem cell transplant, the condition can be managed with medication, but not cured.


Though CGD can be managed with medication, unfortunately there’s no easy cure.

The kind kids at Emily Carr Secondary School and Austin’s family are hoping that this outreach will produce a perfect match!

Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

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