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Daily Archives: April 30, 2016

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University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research
source: pixabay.com

University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research

  • Post author:Octavia Walker
  • Post published:April 30, 2016
  • Post category:Castleman Disease/Rare Disease

His name is David Fajgenbaum. Although he is now a medical professor, his own journey with health and wellness has been a tumultuous one. His story starts with his time…

Continue Reading University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research
When “This is Stupid” Became My Acromegaly Mantra
mohamed_hassan / Pixabay

When “This is Stupid” Became My Acromegaly Mantra

  • Post author:Patient Worthy Contributor
  • Post published:April 30, 2016
  • Post category:Acromegaly/Rare Disease

Rob is a pretty incredible guy. He is a grade A techie and he is a family man. Rob is living with Acromegaly, a rare disease which is caused by a very…

Continue Reading When “This is Stupid” Became My Acromegaly Mantra
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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