NJ Boy with Castleman Disease Returns Home After “Largest Mass Ever” Removed
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NJ Boy with Castleman Disease Returns Home After “Largest Mass Ever” Removed

10-year-old Joey Koslowski doesn't let the small...err, the big stuff get him down. According to MyCentralJersey, the boy is "the youngest child to have the largest mass in the world" caused…

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He Faced Death Multiple Times From iMCD But David Fajgenbaum Will Not Give Up
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He Faced Death Multiple Times From iMCD But David Fajgenbaum Will Not Give Up

  To celebrate Rare Disease Day and raise awareness for approximately seven thousand rare diseases, Dr. Francis Collins, director of the National Institutes of Health, recently interviewed a person he…

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2019 Global Genes Rare Patient Advocacy Summit Highlights: Part One

The 2019 Global Genes Rare Patient Advocacy Summit was filled with incredible presentations that highlighted steps for progress in research and advocacy organization, provided solidarity for the rare community, and…

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Doctor With Idiopathic Multicentric Castleman Disease Continues to Make Progress in Researching His Own Disease
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Doctor With Idiopathic Multicentric Castleman Disease Continues to Make Progress in Researching His Own Disease

According to a story from the Philly Voice, it has been nearly nine years since Dr. David Fajgenbaum was first diagnosed with idiopathic multicentric Castleman disease. This immune system disorder…

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A Doctor With Castleman Disease is in a Race Against Time to Save His Own Life
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A Doctor With Castleman Disease is in a Race Against Time to Save His Own Life

According to a story from today.com, Dr. David Fajgenbaum was first diagnosed with Castleman disease in 2010. His first encounter with the illness was terrifying. He was confined to the…

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One Doctor’s Fight Against His Castleman: This Time, It’s Personal
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One Doctor’s Fight Against His Castleman: This Time, It’s Personal

Not many people can say they’ve dedicated their life to curing the disease that could lead to their death, but David Fajgenbaum certainly can. In a fascinating Science Magazine article, David…

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University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research
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University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research

His name is David Fajgenbaum. Although he is now a medical professor, his own journey with health and wellness has been a tumultuous one. His story starts with his time…

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