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Daily Archives: May 16, 2016

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May 16th Is HAE Day – Participate!

May 16th Is HAE Day – Participate!

  • Post author:Kristen Lord
  • Post published:May 16, 2016
  • Post category:HAE/Rare Disease

May 16th is HAE Day. Participate in raising awareness by joining the campaign to cover the world with smiles.

Continue Reading May 16th Is HAE Day – Participate!
Aún no hay un diagnóstico? podría Watson ser la respuesta?

Aún no hay un diagnóstico? podría Watson ser la respuesta?

  • Post author:Patient Worthy Contributor
  • Post published:May 16, 2016
  • Post category:Rare Disease

La edad de las máquinas, estamos en ella! La tecnología se ha hecho cargo. Hace algunas décadas, cuando alguien hablaba de la tecnología, pensado en Orwell novela 1984, las películas…

Continue Reading Aún no hay un diagnóstico? podría Watson ser la respuesta?
Life Improves for 14-Year-Old With Dystonia
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Life Improves for 14-Year-Old With Dystonia

  • Post author:Winnie Nash
  • Post published:May 16, 2016
  • Post category:Dystonia/Rare Disease

When you think of 14-year-old boys, what do you think of? Rough-housing, raging hormones, an abundance of energy, maybe a little teenage rebellion? Often that’s the case, but Cooper Wilson,…

Continue Reading Life Improves for 14-Year-Old With Dystonia
Young Boy with DMD Makes Wish to Become Ant-Man, Not What You’d Expect
Pixabay

Young Boy with DMD Makes Wish to Become Ant-Man, Not What You’d Expect

  • Post author:EmpatheticBadass
  • Post published:May 16, 2016
  • Post category:Duchenne Muscular Dystrophy/Rare Disease

If you have a rare disease with no cure, it’s important to live your future today. Bradon Coy, 10, took that advice by travelling all the way from the United…

Continue Reading Young Boy with DMD Makes Wish to Become Ant-Man, Not What You’d Expect
Be a Step to Better the Lives of Those with Lyme

Be a Step to Better the Lives of Those with Lyme

  • Post author:Kristen Lord
  • Post published:May 16, 2016
  • Post category:Lyme Disease

If you or someone you know and love has Lyme, then you know how important it is for the medical community to have as much information as possible about it. Senator…

Continue Reading Be a Step to Better the Lives of Those with Lyme
Sarcoidosis Treatment May Be On the Cusp of Improvement
Source: pixabay.com

Sarcoidosis Treatment May Be On the Cusp of Improvement

  • Post author:Erica Zahn
  • Post published:May 16, 2016
  • Post category:Rare Disease/Sarcoidosis

Sarcoidosis is caused by tiny granulomas forming most commonly in the lungs or lymph nodes and eyes. Doctors believe it is the result of the immune system trying to fight…

Continue Reading Sarcoidosis Treatment May Be On the Cusp of Improvement
Why Pilates Is The Lyme Disease Secret You Need To Know
Source: www.flickr.com

Why Pilates Is The Lyme Disease Secret You Need To Know

  • Post author:Lady Kehveen Abernathy
  • Post published:May 16, 2016
  • Post category:Lyme Disease/Rare Disease

What makes YOU tick? Is it Lyme disease? It was for Jenny Buttaccio, who suffered for years with "an ever-growing list of strange symptoms" without answers. Until finally, a doctor…

Continue Reading Why Pilates Is The Lyme Disease Secret You Need To Know
When You Go To the Doctor and You Didn’t Expect It to Be Lyme.

When You Go To the Doctor and You Didn’t Expect It to Be Lyme.

  • Post author:Kristen Lord
  • Post published:May 16, 2016
  • Post category:Lyme Disease

A lot of people's journey to their Lyme diagnoses starts because they thought they had the flu. The symptoms for Lyme can be wildly contrasting, and two separate cases can look…

Continue Reading When You Go To the Doctor and You Didn’t Expect It to Be Lyme.
How to Know if It’s “Just Back Pain” or Ankylosing Spondylitis
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How to Know if It’s “Just Back Pain” or Ankylosing Spondylitis

  • Post author:EmpatheticBadass
  • Post published:May 16, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

An on the Bel Marra Health website (you can check it out here), talks about the difference between ankylosing spondylitis (AS) and “just back pain.” (It also says that there may…

Continue Reading How to Know if It’s “Just Back Pain” or Ankylosing Spondylitis

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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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