It doesn’t matter what other people see, what matters is how tough YOU know you are. Your inner strength has gotten you through a lot and will continue to!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!
Share your personal story. Comment on a post. Tag us @PatientWorthy. Become a contributor.