Anyone living with Kallmann syndrome (KS) faces multiple symptoms:
- no sense of smell
- delayed puberty
- possible infertility
- complications affecting the kidneys, ears, heart, eyes, and parts of the brain
Patients with Kallmann syndrome require regular consultations with an endocrinologist, that is, a doctor who specializes in hormone-associated diseases.
Other specialists may also be required in some circumstances, such as a cardiologist, neurologist, or psychiatrist, depending on the other health conditions associated with it.
Patients may be advised to continue eating a normal healthy diet, unless another health condition requiring specific dietary requirements (such as heart disease or heart failure) is present.
It is important, however, that patients have an adequate intake of calcium and vitamin D, to maintain bone strength and reduce the risk of osteoporosis.
Marching That Matters
But if you’re anything like Pan Longfei, a born optimist who lives with this rare genetic disorder, you know that optimism is the foundation for courage.
Pan’s courage to influence change motivates his decision to march from Inner Mongolia to Beijing to raise awareness of the rare condition.
Pan does not base his decision on how much he can do for other people. Although it is noble that he wants to help others, his motivation is more because he wants to—not because he feels he has to.
The greatest acts of kindness are those done by choice.
This makes Pan’s efforts genuine versus forced by fear or guilt.
We’ve All Been There
Trying to motivate, inspire, and help people be the best person they can be.
Putting forth all this energy into trying to influence others.
Don’t give up. By all means, be your best self.
Inspire. Motivate. Be a great role model.
And hopefully others will admire you so much that they will want to take action to be like you. Be like Pan Longfei.
