Tags Posts tagged with "Community Spotlight"

Community Spotlight

David Church is a 21-year-old Professional Billiards player and he has the will power of a Saint. He suffers from Moebius syndrome, an extremely rare...

At first glance, little Victoria Thompson looks like your average happy and healthy toddler. You'd have no idea that once upon a time, she had...

The memories we have of growing up should be the type that we look back on and smile about. That is not to say...

Brock Chadwick is a Halloween enthusiast and his love for all things spooky has shot around the world. Brock's parents asked strangers to send him...

Phoenix Richey was living a happy and healthy life until things escalated toward the unexpected. During a tumultuous 24 hour period, a strange allergic reaction...

Parenthood is one of the greatest joys for most people. But for Fanny Vlahos, a young Michigan woman, holding her infant son is nothing...

Behind her smile of gleaming baby teeth and her bright, sparkling eyes hides a deadly disease. Sweet Iris has a rare condition; one she...

Residents of Omaha ran together during a 5K and 1K run to raise money for kids with cancer and their families at Lewis and...

According to a first-person story on the Global Genes' Rare Daily website, Tara Voogel and her family were plagued by a medical mystery for...

There are people in society who seek to divide us based on what our differences are, such as color, ethnicity, religion, dialect, lifestyle, political...

When three-year-old Jake Burgman was born, something was wrong. Three months into his life, the Burgman's noticed that Jake was unable to lift his own...

There are a lot of stupid videos on the internet. It’s amazing what can catch on and go viral. Some videos are funny and...

The future is now. A small robot called AV1 will allow a sick boy to experience the classroom from home. When you're diagnosed with a...

There is a definitive group of people out there who love to hate on message boards and crowd-sourced information websites, like wikis. Their chief...

You’re used to seeing Santa at his workshop, at the mall, under your tree—but at an art exhibit? Well, for one Alaska teen living...

For patients, caregivers, healthcare providers, and anyone interested in learning more about liver diseases, there is a website called Focus. This website is organized by...

Natalie Stokes was always the curvy one in her group of friends. But when she started putting on more and more weight despite cutting...

Amber and Ryan Dollinger were preparing for the birth of their second son just as Hurricane Harvey was plowing toward them dead-on. They fled their...

This is the story of Eddie and Sarah Yang, their children, and challenges they face with a rare disease called congenital central hypoventilation syndrome...

In Hartford Connecticut, 12-year-old Emma Becker has been fighting the brave fight against cancer for the last four years. Her condition: Neurofibromatosis, a condition that...

According to a lovely post on the International Waldenstrom's Macroglobulinemia Foundation website, Julianne married the love of her life at the age of 19;...

When raising children, parents spent a lot of time discussing the challenges of child-rearing with others, reading articles and books, and wondering if we...

Des Moines news anchor, Elizabeth Klinge, is receiving quite the social media buzz after posting heart-warming photos of her daughter Hanalay and her notable...

What would you do if your child was born with a rare neurological disease? So was the case for a small town boy. In...

I was laying on the cold, hardwood floor again after drinking phospho cysteamine(the earlier form of Cystagon, treatment for Cystinosis). My stomach was roiling...