More Renal Cell Carcinoma Treatments Improve Patient Outcomes: George and Shaun’s Stories
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More Renal Cell Carcinoma Treatments Improve Patient Outcomes: George and Shaun’s Stories

  "I thought it was a hernia." When George Benson experienced lower abdominal pain in 2009, at age 51, he wasn't concerned. He was a truck driver, artist, and family…

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Dr. Eunice Wang Discusses Newly Approved Treatments for Acute Myeloid Leukemia
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Dr. Eunice Wang Discusses Newly Approved Treatments for Acute Myeloid Leukemia

  Earlier this year, The Leukemia & Lymphoma Society hosted a presentation by Dr. Eunice Wang, Clinical Leukemia Service, Professor of Oncology, Roswell Park Comprehensive Cancer Center. Dr. Wang’s presentation…

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Visually Impaired and Academically Driven? Canada has a New Scholarship for You
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Visually Impaired and Academically Driven? Canada has a New Scholarship for You

As reported in Globe News Wire, amidst a difficult time for rare disease patients as the medical world’s refocuses on the coronavirus, a new scholarship has been announced that could…

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June is Scleroderma Awareness Month: Spreading Rare Disease Awareness
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June is Scleroderma Awareness Month: Spreading Rare Disease Awareness

According to a story from Scleroderma News, June is recognized as Scleroderma Awareness Month. While physical distancing as a result of the ongoing coronavirus/COVID-19 pandemic may keep some folks at…

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Arabel Spent Quarantine With her Mom and her Paints: An HAE Patient Story
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Arabel Spent Quarantine With her Mom and her Paints: An HAE Patient Story

Arabel Standingbear sketches figures with lead pencils and paints realistic scenes with acrylics. Her poem was accepted by a museum. She has won in local art contests between schools, and…

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From “Survivor” to Surviving Hodgkin Lymphoma: How Ethan Zohn’s Log Challenge Raises Cancer Awareness
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From “Survivor” to Surviving Hodgkin Lymphoma: How Ethan Zohn’s Log Challenge Raises Cancer Awareness

  Growing up, my family and I faithfully watched Survivor each week. Although my parents stopped watching a few years back, settling in every Wednesday during the season is somewhat of a…

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Filmmaker with Muscular Dystrophy Wins Award for “Muscle Warriors” Documentary
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Filmmaker with Muscular Dystrophy Wins Award for “Muscle Warriors” Documentary

  According to Disability Horizons, an extremely talented filmmaker with muscular dystrophy recently won an Award of Recognition from The Best Shorts Film Competition. Stephanie Castelete-Tyrrell's film, entitled Muscle Warriors, documents…

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This Muscular Dystrophy Patient has Spent Her Life Working to Improve the Lives of Others
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This Muscular Dystrophy Patient has Spent Her Life Working to Improve the Lives of Others

Jalee Pelissier lives with muscular dystrophy. When she was just 13 she became an advocate for others with disorders or disabilities like her own. Now 20, her advocacy has only…

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Ankylosing Spondylitis has Taken Her Mobility, and She Fears Her Daughter is Next
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Ankylosing Spondylitis has Taken Her Mobility, and She Fears Her Daughter is Next

For Emma, the worst part of receiving her diagnosis with ankylosing spondylitis wasn't adapting to the constant pain, losing her breath over five minutes of standing, being too exhausted to…

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Read How One Small Town in Alabama has Worked Together to Fight COVID-19
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Read How One Small Town in Alabama has Worked Together to Fight COVID-19

Mobile County Mobile County has unfortunately become one of the hotspots for COVID-19 in Alabama. But individuals and organizations are working tirelessly to help their community. Individuals Catherine Drake has…

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“The Way That Everyone is Acting Now? Unfortunately, Thats Sort of How We Normally Run Our Lives.” A Immunosuppressed Patient And COVID-19.

Brooke Ramirez's pregnancy with her first daughter went as planned, and her new baby Trinity passed her developmental milestones. It wasn't until she was five months old that they noticed…

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