Tags Posts tagged with "Community Spotlight"

Community Spotlight

Jane Hamilton, a student at Century High School, Minnesota, has Tourette Syndrome, which is a disorder of the nervous system that can cause involuntary vocalizations...

“It’s all in your head.” I dare say these are words that many people living with a rare disease, including dystonia, have heard. It’s absolutely...

Everyone with dietary restrictions knows the struggle of going to the grocery store, scanning the nutrition, and sighing when it doesn't quite meet the...

You've heard about Hurricane Irma and Maria that hit Puerto Rico, destroying schools, hospitals, and leaving the island without power. You've seen the devastating...

If you're a fan of indie documentaries and contemplating the purpose of life, you'll probably like Gabe. Long before the filming began, Gabe Weil's story...

Four years ago, Meli Dez and Jules Morse came back from their "mom-cation" to Montreal changed. Both women were mothers of young children, and...

Disease and community are both powerful things. When AAG, a rare disease affected Erika's life, her community fought back with her. Find out how...

All her life, Caitlin Shaw, a 15-year-old girl in England, has faced a number of serious health problems. She was born with numerous heart...

Hannah Chertock's art is a stunning testament to patience, and a thorough investigation of what it means to live in a human body. Chertock, the...

They say you have to suffer for your art-- this actor and director took that literally. Shooting a major feature film is exhausting work. Salman...

Kelley O'Brien's hands shook as she stood in her bathroom, preparing for a date. It wasn't that she was nervous, or at least, she...

As originally reported by WCSH6 Portland, Kate Woodside has become an internet inspiration to other kids affected by Alagille Syndrome. It’s common these days to...

Sam and Anna Beiler have not one, but two children with a rare degenerative disease that causes blindness. As of now, there is no treatment. Last...

Sixteen-year-old Ashrai Kumar has endured many nights of tossing and turning in pain due to ulcers caused from Behcet's disease. This chronic condition is seen...

It had never even crossed my mind that there was a connection between my bruised skin, clicking jaw, Sally Hansen's strengthening nail polish, the...

Virginia Ventura, 25, woke up one morning when she was 6, and found she was unable to move her legs. There had been no...

Amanda McGrory's teammates nicknamed her work out "The Stairway to Hell." Depending on how you feel about intense work outs, that could make you...

In Chicago, a panel of lawmakers and parents are fighting back after the loss of children to a rare disease. Shermane Jenkins lost her two-year-old...

Residents of a small Kansas town united together to post fliers and posters, all to raise awareness about a boy with rare disease. Eleven-year-old Peyton...

Rare disease began shaping acclaimed photographer, Karen Haberberg's family years before she was born. Her parents had given birth to her older brother, who was...

Three-year-old Ben Graham has grown an affinity for all things Police. He gets a thrill from their cars, their dogs and uniforms. But he's been...

Twin three year olds, Marshall and Matthew, stole Linda Trapenier's heart the day she met them. She say she knew immediately "they were my...

Carol Town, 63, gave a big hug to surgeon, John Wallwork. They hadn't seen each other for 30 years. Carol attended a reception celebrating...

Lily Mason, eight, saw her community uniting in support of her rare disease that only limits her eating to nine safe foods. The disease is...

While other kids his age run amok in the wildness of their Terrible Two's, Lincoln Woodmass remains immobile. No running, no jumping and the...