Remembering Rachael Kaflowitz: One Mother’s Fight to Support NPC Research and Awareness (Pt. 3)
Courtesy of Debbie Kaflowitz

Remembering Rachael Kaflowitz: One Mother’s Fight to Support NPC Research and Awareness (Pt. 3)

To learn more about Rachael's story, Niemann-Pick type C (NPC) symptoms, the diagnostic process, and how her mother Debbie found and offered support to other families, take a look at Parts…

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Remembering Rachael Kaflowitz: One Mother’s Fight to Support NPC Research and Awareness (Pt. 2)
Courtesy of Debbie Kaflowitz

Remembering Rachael Kaflowitz: One Mother’s Fight to Support NPC Research and Awareness (Pt. 2)

In Part 1 of Rachael's story, I spoke with her mother Debbie about what Niemann-Pick type C (NPC) is, the beginning of the diagnostic journey, and how Dr. Behar helped…

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Remembering Rachael Kaflowitz: One Mother’s Fight to Support NPC Research and Awareness (Pt. 1)
Courtesy of Debbie Kaflowitz

Remembering Rachael Kaflowitz: One Mother’s Fight to Support NPC Research and Awareness (Pt. 1)

“Hi, I’m Rachael, and I’m forever 33.” When Debbie Kaflowitz remembers her daughter, she thinks about everything that Rachael loved to do. Rachael enjoyed dancing and performing in ballet recitals,…

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How Lina Williamson Works to Empower the Ehlers-Danlos Syndrome Community
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How Lina Williamson Works to Empower the Ehlers-Danlos Syndrome Community

“The patient network is incredibly important,” Lina Williamson, PhD, explained to me. You see, in her childhood, Lina experienced a number of seemingly unexplainable symptoms: severe and sometimes debilitating leg…

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Compassion: The Staff at Cardinal Glennon’s Hospital Supported Joey and His Nephew’s Fight Against Acute Lymphoblastic Leukemia
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Compassion: The Staff at Cardinal Glennon’s Hospital Supported Joey and His Nephew’s Fight Against Acute Lymphoblastic Leukemia

Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

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UTHealth Houston Physicians Are United In Treating 5-year-old With Spina Bifida
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UTHealth Houston Physicians Are United In Treating 5-year-old With Spina Bifida

  According to a recent article from UTHealth Houston, a five-year-old suffering from a severe case of spina bifida has brought together a number of doctors to give her the…

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My Genetically Altered Life: How CAR-T Transformed My Life with Diffuse Large B-Cell Lymphoma

Written by Robyn Stacy-Humphries Wolverine, Spiderman, Wonder Woman, and Deadpool - superheroes most of us love. Why? They have superpowers and escape death by some type of genetic alteration. Humans…

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