Tags Posts tagged with "Community Spotlight"

Community Spotlight

Andrew Macnab received a diagnosis of dermatomyositis last year. His sister Helen Keith is preparing for her first marathon in order to help Andrew....

This is an update on PW Contributor Emily's story, which you can read here. I was born with spina bifida (lipomyelomeningocele), hyperbilirubinemia, antibody-mediated hemolysis, colic,...

A fourteen-year-old girl called Kira Noble from Edinburgh, Scotland has raised £340,000 (about $460,000) for surgery to remove her neuroblastoma tumour, reports The Daily...

According to a story from Cambridge News, Ethan Monk's Williams syndrome managed to evade detection until just two years ago. Ethan had some peculiar...

According to a story from the Tennessean, learning that both her husband and daughter had the rare and dangerous disease atypical hemolytic uremic syndrome...

According to a story from BBC, Alex Hill was just eight-years-old when his mother, Sarah, started forming a hunch that something was off. The...

Many times, diseases can take very physical tolls on a person’s body. These physical symptoms can sometimes be uncomfortable, they can be painful, and...

This patient story is written by PW Contributor Kim Hartgraves. I was in the military for nine and a half years, until I had to...

Energy industry leaders such as Love’s and Trillium recently held a fundraiser in Houston, Texas. The funding supported Texas Children’s, the local branch of...

A woman from the UK, whose husband was diagnosed with Parkinson's disease many years ago, has the unique distinction of being able to detect...

According to a story from The Independent, the 60 years of blood donations from a single man may be directly responsible for saving the...

  According to a story from CTV News, Triss Hunter is a junior at Ecole Mission Senior Secondary School in the Fraser Valley. This year,...

Jordy Cernik isn't afraid of anything. It's not that he has some kind of super ability that makes him fearless or special secret agent...

  In Cincinnati, there are two children, Taryn and King Walker. They are 13 and 11 years old respectively. Taryn and King are excellent students...

Whenever a rare disease family is in crisis, which happens all too frequently, the request for prayers goes out to others, knowing that the...

Dear UK businesses and decision makers within them, I know it’s mental health awareness week but for my benefit could you for just a couple...

According to a story from the Leamington Observer, four-year-old George Young's first words were 'mama' and 'papa,' but he did not know how to...

When I was pregnant with my second child, I knew it would be different. We had all the essentials from having my daughter a...

Ever since I was little I have always loved the thought of Mother’s Day. My mom has always been a hero in my mind....

According to a story from The Tennessean, mother Melissa Hogan has been inspired by her son Case's Hunter syndrome to start a nonprofit organization...

No one should outlive their child. Losing two children to the same rare disease is a pain that most parents can never understand and...

According to a story from Newshub, Freda Evans learned early on that there were no treatments covered under the New Zealand health care system...

According to a story from blackpoolgazette.co.uk, the NHS has decided to postpone a decision to approve a drug for the treatment of Batten disease....

According to a story from the Yorkshire Evening Post, five-year-old Toby Nye, from Leeds, has been seeing significant benefit from an antibody therapy treatment...

The hashtag #hotpersoninawheelchair went viral after the Youtuber and activist Annie Segarra used it as a response to an offensive tweet by Ken Jennings,...