Why Looking for a Miracle is the Best Thing Since Sliced Bread

This stage of life is hard.

I’m talking right now to all the moms who are probably somewhere between late 20’s to early 40’s.

You likely have a kid or more —probably ranging in age from newborns to about early school age.

In this stage of life, exhaustion rules our lives—mental, physical, and emotional—somehow, we’re surviving on autopilot.

mom mama ma mommy bullies primary sclerosing cholangitis PSC
When you’re a parent, getting a little peace and sanity can be a tall order. {Source: giphy.com]

In this stage of life, we are dealing with so many firsts and milestones—talking, walking, feeding, sleep schedules, bouts of the sniffles and stomach bugs, nap schedules, schools agendas, and activity schedules.

A million balls we are juggling, and a lot of us probably feel like we are dropping most of them.

And for Alyssa Fairbanks, life continues to throw her punches too. She is a mother of two young children, and a woman who was 13 when she was diagnosed with primary sclerosing cholangitis (PCS).

Fairbanks can no longer work or drive, orders that frustrate the fiercely independent 28-year-old. She lives with PCS, a rare disease that still comes with more questions than answers. Her father, Duane Fairbanks, was diagnosed with the same condition, and her story shares how she fights the same fate as her dad.

Fairbanks deals with guilt.

She is bombarded daily with a whole host of decisions—both for her immediate fight to live and the security and future care for her children.

She is overloaded with questions and limited answers—a quest for balance, but she can barely find it.

A Miracle? Today? For Fairbanks? You bet!

She is in need of them every day as she questions, “What guides her destiny?”

She can try to set goals and strive to reach them, but there is no guarantee that she will be able to achieve them.

Anyone who lives with a chronic condition or rare disease can testify to how frustrating life can be at times.

Maddening! Infuriating! But somehow, we keep moving forward.

Keep moving forward, Fairbanks! We’re rooting for you and your miracle.


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