On Thursday, March 30 – Saturday, April 1, 2017 at the Island Hotel, Newport Beach, California, members of the cystinosis community will gather to support their loved ones, suffering from this rare disease.
If you want to register, don’t wait! Registration closes March 17th. AND, if you’re an early bird, there is a special hotel rate for cystinosis families, available until March 1.
There will be discussions on “stem cell and gene therapy, treatments for corneal cystinosis, muscle wasting and myopathy, kidney disease and more.” To find out more about the Cystinosis Research Foundation’s Day of Hope, click here.