Hurry Up! Register for the 2017 CRF Day of Hope Family Conference

On Thursday, March 30 – Saturday, April 1, 2017 at the Island Hotel, Newport Beach, California, members of the cystinosis community will gather to support their loved ones, suffering from this rare disease.

If you want to register, don’t wait! Registration closes March 17th. AND, if you’re an early bird, there is a special hotel rate for cystinosis families, available until March 1.

There will be discussions on “stem cell and gene therapy, treatments for corneal cystinosis, muscle wasting and myopathy, kidney disease and more.” To find out more about the Cystinosis Research Foundation’s Day of Hope, click here.


Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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