Get informed and gear up for Rare Disease Week this Monday!
Start with our Editor’s Choice. This week we have a sweet story about a pup and how he helps his 10-year-old companion with mastocytosis. We also have yet another IPF story supporting exercise.
One of our PW Contributors also details how her son is suffering from rare disease… and the stigma that comes along with it. And lasty, we have info on a possible CF breakthrough.
So sit back and enjoy this week’s Editor’s Choice!
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Unbelievable Abilities of a Mastocytosis Service Dog in NC
A young girl suffering from mastocytosis has found new hope…
…and a new friend! Check out her story here.
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IPF: What You Need to Know About Benefits of Exercise
Exercise is generally supported by medical professionals for healthy individuals.
But what about those of us in the rare disease world?
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Changing the Use of “Special Needs”
The term “special needs” is so broad and almost always comes with a stigma.
This mom with a son suffering from Pfeiffer syndrome is determined to change that.
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Is This a Cystic Fibrosis Breakthrough?
The lastest research in CF is providing new insight into what causes it’s symptoms.
Read more here to get the latest.
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