The Shoulder Flop
This article was originally published on Luke's blog and is shared here with permission. Keeping our kids safe is every parent’s number one job. Even as an adult I associate…
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The Shoulder Flop
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Here’s Why Support Groups are So Important in the Narcolepsy Community
San Diego is rumored to have one of the nicest climates in the United States. From what I've heard, it's a balmy 72 degrees almost year-round, and the sky is…
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Here’s Why Support Groups are So Important in the Narcolepsy Community
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What to Expect When You’re Diagnosed with Sickle Cell Disease (SCD)
What does it mean if you have the sickle cell trait? Or what if you have sickle cell disease? Does it mean you can’t exercise? Does it mean you will…
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What to Expect When You’re Diagnosed with Sickle Cell Disease (SCD)
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Familial Dysautonomia Caregiver Shocks the Inclusion Debate
My girlfriend called me the other day—crying hysterically. I couldn’t understand her much, but it didn’t matter. I know she’s raising her first-born child with familial dysautonomia (FD). Problems related to…
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Familial Dysautonomia Caregiver Shocks the Inclusion Debate
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Another Look at the Misconceptions of Narcolepsy
It’s a plot device. It’s a joke to be exploited by comedians. It shows up as the punchline in movie after movie. As soon as it comes out that a…
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Another Look at the Misconceptions of Narcolepsy
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How One Little JIA Softball Dynamo Gives Us Hope
Growing pains usually occur in younger children and are equally common in girls and boys. They are characterized by aches and pains and often occur in the lower limbs, usually…
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How One Little JIA Softball Dynamo Gives Us Hope
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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher
Really? Really. As if having one serious chronic disease isn’t enough, what makes God say, “Hmm…Let’s give this poor, innocent child, another chronic illness"?! In this case, I'm talking about…
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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher
