Editor’s Choice: Love, Lyme, and Lou Gehrig’s

Welcome back to Editor’s Choice!

May is Lyme Disease Awareness Month, and to bring you awareness we have a 7-minute documentary you won’t want to miss! We also have some good news for those suffering from ALS.

Not only do we have news on ALS treatment, we also have info to report on treatment for Huntington’s Disease. Lastly, We have a heartwarming story about love being found in the time of cystinosis.

So relax! Take a breather and check out this week’s Editor’s Choice!

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Love in a Time of Cystinosis: How Battling a Rare Condition Lead to a Lasting Romance

We had the pleasure of talking to Bryan about battling cystinosis.

Perhaps more importantly, we had the chance to hear about the love that grew between him and his significant other in the face of rare disease.

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My Life with Lyme

William and Mary student and Lyme Disease Warrior Alexis Plofchan was the subject of this riveting seven-minute doc.

Watch it here.

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Good News for ALS Patients: FDA Approves ALS Treatment

The ALS Ice Bucket Challenge brought to life the horrors of this rare disease.

It also brought hope and capital for research funding. And that research has possibly resulted in some good news for the ALS community.

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Great News for the HD Community: A New Treatment is Approved!

Whenever there is a new treatment approved, there is inspiration and motivation to keep advocating for your rare disease.

Read about Huntington’s disease latest treatment option!

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Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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