Editor’s Choice: Exciting New Tools and Devices to Help Rare Disease

Welcome Back to Editor’s Choice!

The end of the week is finally here, and we have some reading material for you.

First, we have an awesome story of a CF warrior, info on IPF awareness, a new parkinson’s hypothesis and a helpful tool for hemochromatosis.

So sit back and enjoy this week’s Editor’s Choice.


New Device Helps Teen with Cystic Fibrosis Become an Athlete

This young man is quite the swimmer! But he’s also battling CF.

Find out more about how he does it.


Here’s Why We NEED to Raise Awareness about IPF

September is fast-approaching, and that doesn’t just mean back-to-school supplies! It’s also IPF Awareness Month.

Read more here.

There’s $12.7 Million Behind This New Parkinson’s Hypothesis

$12.7 Mill?! That’s a ton of dough.

Check out what it’s doing for the rare disease community here.


A Surprising Tool to Help Your Hemochromatosis

As a rare disease sufferer myself, I’ll take any help I can get!

Check out this hemochromatosis tool here.

Do you have a rare disease experience of your own? Share with us here.

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