Time is Running Out for Epidermolysis Bullosa Clinical Trial

Let’s talk clinical trials. Clinical trials are part of clinical research and at the heart of all medical advances. Clinical trials look at new ways to prevent, detect, or treat disease. Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments.

And if you or someone you love is living with epidermolysis bullosa (EB), then this clinical trial may be something you need to read. Click here! Recruitment has started, and the estimated primary completion date is February 2018.

The goal of clinical trials is to determine if a new test or treatment works and is safe. Clinical trials can also look at other aspects of care, such as improving the quality of life for people with chronic illnesses.

Physicians and patient advocates are fighting for better access to clinical trials and more comprehensive trial options for patients. This desperation speaks to the important role clinical trials play in EB care.

Trial participation is altruistic. There may or may not be benefits to you, but the trial results will significantly benefit patients that come after you because it helps researchers to see what is working and what is not.

Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future. The epidermolysis bullosa (EB) community needs this. There’s currently no cure for epidermolysis bullosa (EB), but treatment can help ease and control symptoms.

Every press release you see about a new promising therapy…

Every news story about a new miracle…

It’s all made possible by clinical trial participants just like you.

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