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Daily Archives: September 26, 2017

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A Strike Back Against Zika Virus
Source: Pixabay

A Strike Back Against Zika Virus

  • Post author:Andres Rovira
  • Post published:September 26, 2017
  • Post category:Microcephaly

Zika! It was the talk of the town during 2015-16 and has thus quieted down, but the virus still lingers and scientists are still working to combat it. A quick…

Continue Reading A Strike Back Against Zika Virus
SpringWorks Therapeutics Beefs Up Programs with Handsome Funding
luvqs / Pixabay

SpringWorks Therapeutics Beefs Up Programs with Handsome Funding

  • Post author:Andres Rovira
  • Post published:September 26, 2017
  • Post category:Neurofibromatosis

Care to be inspired today? There's a group of inspirational world-changers named SpringWorks Therapeutics. These pioneers are on a mission to unite scientists, biopharmaceutical partners, patient groups and philanthropists to…

Continue Reading SpringWorks Therapeutics Beefs Up Programs with Handsome Funding
Largest Verdict Yet in Talc-Ovarian Cancer Lawsuit
[Source: pixabay.com]

Largest Verdict Yet in Talc-Ovarian Cancer Lawsuit

  • Post author:Al Pendleton
  • Post published:September 26, 2017
  • Post category:Ovarian Cancer

Anyone who has had any contact with the United States' court system can tell you how overloaded and rushed it is. Criminal and civil trials will often have to be…

Continue Reading Largest Verdict Yet in Talc-Ovarian Cancer Lawsuit
Loving a Child with a Rare Disease   
Source: Pixabay.com

Loving a Child with a Rare Disease  

  • Post author:Denise Crompton
  • Post published:September 26, 2017
  • Post category:Mucolipidosis Type III

When raising children, parents spent a lot of time discussing the challenges of child-rearing with others, reading articles and books, and wondering if we were doing the right thing in…

Continue Reading Loving a Child with a Rare Disease  
News Anchor Shares Her Baby’s Port-Wine Stain on Facebook
Source: pixabay

News Anchor Shares Her Baby’s Port-Wine Stain on Facebook

  • Post author:Andres Rovira
  • Post published:September 26, 2017
  • Post category:Rare Disease/Sturge-Weber Syndrome

Des Moines news anchor, Elizabeth Klinge, is receiving quite the social media buzz after posting heart-warming photos of her daughter Hanalay and her notable port-wine stain. The photos garnered a…

Continue Reading News Anchor Shares Her Baby’s Port-Wine Stain on Facebook
CMT and Experiences at the Academy for the Blind

CMT and Experiences at the Academy for the Blind

  • Post author:Patient Worthy Contributor
  • Post published:September 26, 2017
  • Post category:Charcot-Marie-Tooth disease/Rare Disease

The first story that comes to Quentin's mind about a turning point in his life is about his attendance at a school for the blind. When Quentin lost his vision…

Continue Reading CMT and Experiences at the Academy for the Blind
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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