Finding a community is important for everyone — but particularly if you have a chronic or rare disease. For the approximately 300,000 Americans with scleroderma, there’s an active support group that meets each year to provide education, inspiration, and fellowship. In 2018, the 20th anniversary of the Scleroderma Foundation’s Annual National Patient Education Conference will be held on July 27-29 at the Loews Philadelphia Hotel in historic, downtown Philadelphia.
The conference offers educational and networking opportunities for people living with scleroderma, their caregivers, family members, and friends. There is also a juvenile program at the conference that is open to juvenile patients, their siblings or even the child of an adult patient.
Workshops, panel discussions, and other educational sessions are led by leading researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Conference is a great way to learn about the disease and become connected with others that are dealing with it.
With more than 60 workshops, dozens of exhibitors and the chance to meet other patients and caregivers, the weekend’s activities offer an excellent opportunity for attendees to make friends, learn about the latest treatments and find new strategies for living well with the condition.
