June is Scleroderma Awareness Month: Spreading Rare Disease Awareness
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June is Scleroderma Awareness Month: Spreading Rare Disease Awareness

According to a story from Scleroderma News, June is recognized as Scleroderma Awareness Month. While physical distancing as a result of the ongoing coronavirus/COVID-19 pandemic may keep some folks at…

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The Importance of Cancer Screenings in Patients with Scleroderma, Dermatomyositis
Elizabeth M. Dugan, Adam M. Huber, Frederick W. Miller, Lisa G. Rider / CC BY-SA (https://creativecommons.org/licenses/by-sa/3.0)

The Importance of Cancer Screenings in Patients with Scleroderma, Dermatomyositis

  This year, because of COVID-19, many healthcare-related events and symposiums have been moved online. However, that doesn't mean that the insights are any less helpful! In the virtual ACR…

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Scleroderma Symptoms Shown to Be Alleviated with Tracleer Treatment
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Scleroderma Symptoms Shown to Be Alleviated with Tracleer Treatment

by Danielle Bradshaw from In The Cloud Copy A year-long study has shown that Tracleer greatly reduces the skin-related symptoms of scleroderma. The results also showed that although it helped…

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Phase 1 Study of Experimental Systemic Sclerosis Treatment Bermekimab Begins
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Phase 1 Study of Experimental Systemic Sclerosis Treatment Bermekimab Begins

According to a recent press release from XBiotech, a Texas-based biotechnology company, patient dosing is now underway in a phase 1 clinical study of the Company's investigational systemic sclerosis treatment, bermekimab.…

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Findings From a Mouse Study Could Have Major Implications for Scleroderma
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Findings From a Mouse Study Could Have Major Implications for Scleroderma

According to a story from Scleroderma News, the results of a recent mouse study could have significant implications for the future of scleroderma treatment. In the study, scientists used a…

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ICYMI: New Treatment for Scleroderma Lung Disease Approved by the FDA
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ICYMI: New Treatment for Scleroderma Lung Disease Approved by the FDA

According to a story from American Nurse Today, the US Food and Drug Administration (FDA) approved a treatment on September 6th, 2019 for interstitial lung disease associated with scleroderma, a…

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First Human Trial Completed for Experimental Scleroderma and Multiple Sclerosis Drug
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First Human Trial Completed for Experimental Scleroderma and Multiple Sclerosis Drug

According to a story from Financial Buzz, the drug developer Emerald Health Pharmaceuticals, Inc., recently announced that the company had completed a phase 1 clinical trial for its experimental drug…

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Scleroderma: The Skin-Hardening Disease Affecting Two UK Sisters
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Scleroderma: The Skin-Hardening Disease Affecting Two UK Sisters

An article from Comic Sands recently covered the story of a UK mother, Alison Beesley, who is now committed to taking care of her daughters Eliza and Eleanor full time. Eliza is nine years old and…

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University of Michigan Professor Creates Website to Provide Scleroderma Patients Resources and Support

Dinesh Khanna, a professor at the University of Michigan has worked heavily with the rare disease scleroderma. Michigan has its own Scleroderma Program, of which Khanna is the director. Through…

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NIH Dishes Out Over $10 Million Towards Autoimmune Disease Therapies
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NIH Dishes Out Over $10 Million Towards Autoimmune Disease Therapies

According to a story from Scleroderma News, a team of researchers associated with Michigan Medicine has been awarded a grant to the tune of $10.2 million from the National Institutes…

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Study Links IL-1 Cytokines to Increased Scarring in Systemic Scleroderma Patients

According to a publication from Scleroderma News, a study recently published in Clinical & Transitional Immunology suggests that certain cytokines (small proteins that play an important role in communication between…

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Finding Unbiased, Credible Information About Your Rare Disease Can Be Difficult, This Compilation of Resources May Help

When you or your child is first diagnosed with a rare disease it can be so difficult to know where to turn. You want to learn everything about the condition,…

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Boy with Scleroderma has Donated Over 7,000 Gifts to Other Children in the Hospital

Scleroderma Scleroderma refers to a whole group of diseases, all rare, that cause the skin and connective tissues in the body to harden. This is a result of excess collagen…

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Phase 3 Trial for Graft Versus Host Disease to Finally Begin After Funding Boost

Background Novartis ended all of their gene therapy programs which were oncology related in 2016. Unfortunately, that meant an end to many programs that still had potential. This included cell…

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Study Finds that Prognosis for Systemic Sclerosis can be Predicted with this Simple Test
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Study Finds that Prognosis for Systemic Sclerosis can be Predicted with this Simple Test

According to a story from Scleroderma News, the results from a recent study suggest that the six minute walk test can accurately predict outcomes for patients with systemic sclerosis. A…

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Plan Now to Attend the 2018 Scleroderma National Patient Education Conference, July 27-29
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Plan Now to Attend the 2018 Scleroderma National Patient Education Conference, July 27-29

Finding a community is important for everyone -- but particularly if you have a chronic or rare disease. For the approximately 300,000 Americans with scleroderma, there's an active support group…

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Arthritis Foundation Saves the Day for One Young Man with JIA

Juvenile idiopathic arthritis (JIA) is the most common form of arthritis in children. It occurs when the body's autoimmune system attacks healthy tissue and causes inflammation of the joints. What triggers…

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