Plan Now to Attend the 2018 Scleroderma National Patient Education Conference, July 27-29
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Plan Now to Attend the 2018 Scleroderma National Patient Education Conference, July 27-29

Finding a community is important for everyone -- but particularly if you have a chronic or rare disease. For the approximately 300,000 Americans with scleroderma, there's an active support group…

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Major Setback for the Orphan Drug Act
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Major Setback for the Orphan Drug Act

Nerves were high last week as the Senate geared up to vote on the bill to overhaul the U.S. tax code. Members of the rare disease community felt particularly vulnerable,…

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