The world of rare disease is seeing a ray of sunshine with a viable partnership. Two powerhouses of patient advocacy are uniting together to bring about change, awareness and cure-searching.
Global Genes and Festival of Children Foundation have formed the partnership for the first-ever RARE Carousel of Possible Dreams on February 28th located at the San Francisco Children’s Creativity Museum. This inaugural meeting of the minds will shed light on 32 rare disease charities by tapping into the resources from Carousel of Possible Dreams on World Rare Disease Day.
“We are so honored to partner with an exceptional organization that continuously gives back to children and families around the country,” said Nicole Boice, CEO Global Genes to CISION PR News. “This is an important time for the rare community.
The 32 participating rare disease charities will experience a rare opportunity unlike any other to expand their horizons. Reps for the rare disease community will be able to pledge donations that will fund dreams and needs. They’ll be doing this on the celebrated LeRoy King Carousel throughout the event and in doing so will fund scholarships and educational materials, support family meet-ups, train tutors, and special supped-up wheelchairs, among many other things.
Sandy Segerstrom Daniels, founder and executive director Festival of Children Foundation, hopes to help realize dreams, change lives and bring a newfound hope to children and families in the rare disease world.
Let’s hope that these exciting team-ups will bring about much needed change and cure discoveries in the world of rare.
The exciting event will appropriately take place on World Rare Disease Day from 6pm to 8:30pm. To learn more or to register, click here.
For the entire list of participating organizations in the rare disease carousel, click here.
