Happy first week of spring, everybody!
Spring has finally begun, at least in our hemisphere– we’re breaking out shorts, sunscreens, allergy medicines, and some new rare disease updates. This week, we have an article about a spinocerebellar ataxia trial, as well as new digital therapies that could help patients with MS or schizophrenia. We also have an inspiring story about a CF patient, and an introduction to a family who will stop at nothing to advocate for their son, who was diagnosed with Batten disease.
Sit back and enjoy this week’s Editor’s Choice.
Family Spreads Awareness After Their Son Was Diagnosed With Batten Disease
A second grade boy was diagnosed with a rare genetic condition called Batten disease. His family is doing everything they can to save his life.
Read about it here.
Man With Cystic Fibrosis Channels His Inner Superhero
If you thought CF could stop this man from achieving his #fitnessgoals, think again.
Read more about it here.
Clinical Trials Begin for a Possible Spinocerebellar Ataxia Treatment
The first drug for spinocerebellar ataxia, a rare and debilitating condition, may be on its way.
Check it out here.
New Digital Therapies Developed For Schizophrenia and Multiple Sclerosis Patients
Two pharmaceutical companies have joined together to develop a new line of therapies.
Read about it here.
