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Daily Archives: May 13, 2018

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The Places You’ll Go, Rare Disease Edition

The Places You’ll Go, Rare Disease Edition

  • Post author:Denise Crompton
  • Post published:May 13, 2018
  • Post category:Rare Disease

A popular book by Dr. Seuss that is often given to graduates is Oh the Places You'll Go. Now, suppose Dr. Seuss had entered the rare disease world. Perhaps he…

Continue Reading The Places You’ll Go, Rare Disease Edition
In Celebration of My Fellow Rare Disease Moms: from the Mother of a Son with CGD
Source: Pixabay

In Celebration of My Fellow Rare Disease Moms: from the Mother of a Son with CGD

  • Post author:Patient Worthy Contributor
  • Post published:May 13, 2018
  • Post category:CGD/Chronic Granulmatous Disease

When I was pregnant with my second child, I knew it would be different. We had all the essentials from having my daughter a few years earlier, and advice from…

Continue Reading In Celebration of My Fellow Rare Disease Moms: from the Mother of a Son with CGD
Happy Mother’s Day, From a Daughter Whose Mother has HAE
Source: Alayah McCoy

Happy Mother’s Day, From a Daughter Whose Mother has HAE

  • Post author:Patient Worthy Contributor
  • Post published:May 13, 2018
  • Post category:HAE

Ever since I was little I have always loved the thought of Mother’s Day. My mom has always been a hero in my mind. I remember thinking to myself, “She…

Continue Reading Happy Mother’s Day, From a Daughter Whose Mother has HAE

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